6 hours ago
Thursday, February 26, 2009
Amelia is moving closer and closer to beginning school. We are putting the finishing touches on her paperwork. As it turns out, rather than getting into a long drawn out fight with the Board of Education over providing a nurse for Amelia during the school day, her new school, Roosevelt, stepped up. As it turns out, there is a little boy, similar to Amelia -- g-tube fed, suctioning, nebulizer treatments, etc. His family is going through the same process as us. They are neck in neck to start school. Roosevelt looked into their budget and decided that they are going to hire an LPN for Amelia and this other boy. The two will be in the same classroom of 6 children and the LPN will be there just for the two of them. It's like having a huge gift put right into my lap. Now we just have to get her busing and after school therapies in place and we're good to go -- just about.
I'm having issues with the insurance company now. because we won't be using 40 hours a week of nursing, they are essentially telling me that old addage "if you don't use it, you lose it." So now they're doing another medical review to try and reaccess Amelia's need to have her nursing in place, regardless of whether we use it each week or not. There are going to be days that Amelia will be home sick...and chances are I'll have been up with her all night -- if Nestor's out of town -- that's not a good recipe. There are always tons of doctor's appointments to go to and i will need help with those too. I keep trying to explain that because of Amelia's $2 million lifetime cap on her insurance, we've been looking forward to school so that we can cut back on nursing to try and save the less than $850,000. we have left until she's 18 years old. Most of her specialists don't take Medicaid, so when she exhausts her primary insurance and the Medicaid kicks in, we're going to have to find all new specialists (Neurologist, Pulminologist, Opthomalogist, ENT, Pediatrician, GI, Surgeon and more). Anyway, we have really compassionate Case Managers on it, whom I have good relationships with.
Posted by Debbie at 6:38 PM