Saturday, November 29, 2008


Hope everyone is having a long, wonderful Thanksgiving weekend. We definitely are. We started in NJ at Nestor's sis's house. It was an intimate gathering of his sister, Evelyn, brother-in-law, Carlo, Titi (Aunt) Luz, Grandma, Karena (niece) w/ bo, Jonathan, Spike w/ gal, Christina, Nestor, Amelia and myself. Dinner was superb, sheer perfection -- as always. With fabulous desserts provided by Christina's brilliant sister, Corrina (professional baker...see, Karena and yours truly.

From there we hiked it down to my folk's house in Baltimore. Last night (friday) we had a 70th birthday party for my Mom. We brought in our favorite restaurant, Tio Pepe's food, dessert and used their famed sangria recipe to kick things off. It was really wonderful. I haven't tasted that food since before Amelia was born. We never go out-out when we're down here because there's really no one to leave our girl with. Sooooo yummy! Had leftovers tonite too!

So this brings us to today. More precisely -- this evening when a girl fight broke out. Okay, I might be exaggerating slightly -- but it was cool!!!!! So, Nestor had been spending some quality time with my 17 month old niece, Maya and his little girl was not so happy about this. We were all just hanging out on the playmat...but Maya was getting books read to her and lots of Uncle Nestor's attention. Amelia was playing with stuff, but definitely keeping her eye on Daddy and Maya. Then, Maya took Amelia's little Mickey Mouse driving toy(which she was playing with). Amelia was not happy. Bubbie stepped in and gave Amelia one of Maya's babies (which she was NOT playing with at the time) and Maya hit Amelia in the face. Immediately, Amelia swung out and kvetched at Maya, but Maya's Daddy was quick to swoop in and take Maya into the other room. It was awesome!!! I know what you're thinking...but for us, we were amazed that Amelia stood up for herself. She never moves quickly and her swing was almost in slow motion -- but it was there and she was standing up for herself. We were so proud of her. NOTE: neither of the girls used any force here and no one was hurt at all. Just a little wounded pride.

The girls are friends again and all is well.

Amelia is particularly in love with her big cousin, Ezra(4 yrs. old) who is such a doll with her. He runs in and finds her. He loves me to stand her up so he can give her big hugs. She just laughs and laughs when he does this. He sits next to her and holds her hand or plays with toys with her (we're getting used to the sharing part of it) and is just so sweet. Amelia doesn't have anyone else in her life like Ezra. She doesn't have that kind of contact with other kids, special needs or typically developing -- and it's such a special relationship for her to have. I really adore Ezra for his blind acceptance of Amelia. It gives me such extreme joy to see the two of them together. Amelia is so lucky to have Ezra and Maya as first cousins. I know they are going to be huge influences on her life in years to come.

Tuesday, November 18, 2008

Putting it together

Footage of Amelia walking down the hallway at UCP.
Not the best quality, as it was taken from my phone...but you get the idea.

We've been back from Long Island for a few weeks now and we're getting back into the swing of it all. Amelia is moving a mile a minute. She can't crawl or squirm around fast enough(still on the belly, but now with her head up and grasping the concept of using her hands and elbows for leverage). All of us -- parents, friends and therapists are in astonishment everyday by the amount of things she is doing. Sitting up and lying back down is a fun activity! I have taken a liking to "wheel barreling" her around the apartment. You remember what that is? When you hold someone's feet so they have to walk on their hands. Yeah, she does that! Nestor and I can't even do that. So, it has become our pleasure to have a little girl who we have to watch each moment -- not because of her secretions (although we do that too) but because she is into everything. YAY!

So, on Friday we went to UCP to play with their adaptive equipment and decide what Amelia needs now. Her stander is too supportive, so we are ordering her a less supportive one -- which is half the size that we will hopefully be able to throw into the truck and take with us when we go up to the house or out of town. We are also ordering the gait trainer, which is shown in the video above, because she did so well in it. She actually walked all the way down that long hallway in it! Michelle, the PT in the video, was giving her input on her back and making sure the gait trainer didn't slide out from under her feet. Other than that, it's all Amelia.

We are borrowing the gait trainer (called a Pacer by Rifton) from UCP until ours comes in. We took it with us this weekend to Evelyn & Carlo's (Nestor's sister & bro-in-law's) house. We put Amelia in the Pacer and let her hang out a little in it -- and she walked across the kitchen. It was amazing!!!! We are so proud of her.

She continues to do new things with her mouth too. She has been sucking on her bottom lip still and pursing her lips together. Nestor and I noticed, oddly enough, that she tends to do most of it later in the day to evening. Don't know why. Anyone out there know why? We are into our second week with Amelia's new Speech Therapist, John. He is very sweet natured and calm. First day, Amelia was cool with him, second day -- a little more fiesty, by the third day and on, poor John is being given a run for his money. She is playing him like a 2-3 yr. old. He is incredibly tolerant, resourceful and is out and out trying very hard to become friends. I think he'll break through once they get to know each other a little better.

Tomorrow night will be our first Team Meeting for Amelia in several months. It will be very interesting with all the new people in her life. We are still searching for an OT -- so anyone out there who knows a fantastic OT who will work in the West Village -- let me know!

Tomorrow is also an extremely important day because it is Spike's Birthday! Yes, Nestor's little boy is all grown up. No longer a teenager -- he's going to be 20. I can't believe it. I met Spike when he was 10. He had never tasted raw cookie dough -- he was innocent. Now he's a Pre-med junior at Lehigh, with a beautiful girlfriend and has maintained his level headedness and sweetness. We are so proud of you and love you so much Spikester and know that the best is yet to come!

Thursday, November 6, 2008

Thanks Jodi

Thank you for honoring me with your favorite blog award( see badges above). You are so funny and I think you are absolutely justified to give out your own awards.

For those interested in what I'm talking about go to

Your not so bad yourself sweetheart! xo