Friday, February 5, 2010


Amelia having breakfast

Amelia is growing so quickly -- I can't keep up. For one thing, like most women, she has a very extensive wardrobe. Tons of hand-me-downs, plus Bubbie and Zadie take the kids on a back-to-school shopping spree each year before school starts AND we just got out of a very heavy holiday and birthday season. This means that every nook and cranny of our little apt is crammed (very creatively, I might add) with all her little outfits, shoes and accessories. Recently her feet had a growth spurt and I had to run out yesterday to buy her new shoes. It's not as critical with a non-ambulatory child to get them the most expensive, well made and supportive shoes -- when she walks it's in her braces -- so we just go for cute. Works for us!


This has been a curious week of ups and downs. Amelia, Nestor and I have been fighting colds since last weekend. No fevers for Amelia, just lots of secretions. It's been rough because I've been up with her nights -- and I'm trying to fight off my own thing (no rest for Mommies!) -- but really great because she's getting thru this without antibiotics (very uncommon) just lots of respiratory therapy to clear her out.

Nestor and I had romantic dinner on Tuesday nite (thanks Jozette! -for the giftcard) and on Wednesday I drove him to the airport to go to LA for a month or so. Usually these drop offs are very hard for me, but not this time. We have had such a great couple of weeks together, alone and as a family, it made his leaving easier.
Strange -- but I really felt ok when he got out of the car. Usually I drop him off and as I pull away from the curb I start bawling like a baby. This lasts until I get lost on the ramps getting out of the airport and then thru my haze of tears and swollen eyes I have to figure out where the hell I am and how the hell I'm going to back on the highway or parkway -- or whatever the heck they call the damn thing that gets me back to the city. By then I'm just annoyed and forget all about why I had driven all the way out to the airport in the first place!!!

So Amelia and I got thru the week unscathed. Still fighting off our colds. By yesterday I would say we're both over the hump and sleeping thru the night nicely. Ahhh. Yesterday my friend Sarah came into the city to visit us for the day. It was really nice spending quality time with her. She's one of those friends who's been in my life for so long -- thru different apartments, dogs, boyfriends, husbands, etc.... Someone you know will be with you till the end, ya know? Anyway, we journeyed to Chelsea Market and Amelia and I settled in to watch this really amazing String Trio playing live in front of Amy's Bread, while Sarah went to get a coffee. Amelia was really digging it! I wanted to give the band a dollar but only had a $20. I asked a jolly 60-ish man behind me, who was there with his family, if it would be rude to take change out of the musician's tips, at which point, he reached into his wallet and gave me a dollar to give them. I laughed and refused, but he pushed it into my hand and said he and his twenty-something (son? nephew?) had already tipped them. I felt so odd. Like I was standing with "Every Uncle". I really loved this happy man and his sweet family in those moments. When Sarah returned with her coffee she offered this man back his dollar -- to which he laughed a jolly laugh -- and told us to please keep it -- or give it to the band. Yes Virginia, there is a Santa Clause...he hangs out at Chelsea Market in the off season!

Today Amelia and I are doing the Mother/Daughter hang for Superbowl Sunday. Amelia isn't really into either team, so we'll probably just find some chick flick to watch.


Anonymous said...

Hi-- Guess I heard most of this today, but it's always clearer to read it and I love her cool hi-tops.
Hope Nestor's trip is really a good one this time!

Jodi Michelle Cutler said...

hahahahahahaha- you are hilarious!!! Hmm, interesting post- you almost seemed NORMAL! Wow...*Smile*
Found this on another mom's blog- thought you might find it interesting even though I'm sure you already know about know everything:-P
PANF (Patient Access Network Foundation). This organization provides assistance in the form of reimbursement of out-of-pocket expenses for cetain medications covered by your insurance carrier - like synagis. You can do nearly all of the application on the phone - takes 5-10 minutes. They'll mail or fax it to you and your doctor's office (prescribing doctor) and you and your doctor can fax it back or mail it back. You have to provide proof of income - most recent tax forms and payroll stubs. If your income has changed since your last income tax, don't worry. You're allowed to provide that information. We don't qualify for anything that has income guidelines - except Minimum Alternative Tax on our Income Tax (Yippie). But, we did qualify for this. They are paying ALL of our out of pocket expenses in 2010 for synagis. Our pharmacy will collect the money directly from PANF, so we don't have to come up with the money first. It only takes about a week for the approval once they receive your forms and the doctor's copy. It's pretty quick if you use the fax.

I've heard some of you say that you're paying as much as $300 per shot this year. Please give them a call. You'll probably qualify.

1-866-316-PANF (7263). Just tell them that you want to complete an application for reimbursement for co-pay/deductable related to Synagis.

They also have a website www.PANfoundation. org - Check it out. They also help with other very expensive meds. Every little bit helps.

Debbie said...

Thanks Jodi, this will be really helpful to a lot of families. Great info.

And....NORMAL WHO????? Don't you ever call me that again;p

Sarah Cronin said...

Hi Sweet Friend,
Love the new shoes! Did you get matching ones?
Hope you and Amelia are enjoying watching people shovel don't have to hahahaha. neither do I...nananana.
Been drinking hot cocoa and eating popcorn while watching movies. If you decide to watch Precious, make sure the tissue box is filled. Great snow day here in New Ro. Love when schools are canceled the day before. Yay!
Love you!!!!!! Kisses to you and Amelia.